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Pakistan Children’s Heart Foundation

RESEARCH DEPARTMENT (PCHFRD)

PCHF Research & Publications

PCHF CHD DATA REVIEW: ISSUE 3.
IN-PATIENT CARE: THE DISTRIBUTION OF PATIENTS ACCORDING TO AGE GROUP IN THE LAST 5 YEARS

  • Patient age at PCHF is divided and recorded into four age groups.
  • Patients’ ages ranged from 0.01 to 53 years. (Mean 4.70, median 2.20, mode 2.00, SD 5.65).

by Dr. Samaa Akhtar

#CHD #CHDawareness #CHDawarenessbyPCHF #CHHRI #heartwarriors #1LacDonor4Misbah #MisbahUlHaq

PCHF CHD DATA REVIEW: ISSUE 2.
IN-PATIENT CARE: THE SPECTRUM OF CONGENITAL HEART DISEASES AT PAKISTAN CHILDREN’S HEART FOUNDATION IN THE LAST 5 YEARS

  •  PCHF patient database was used to identify the spectrum of CHDs at PCHF over the past 5 years.
  • The database was also used to estimate the relative frequency of each CHD.
  •  In the past 5 years, the spectrum of CHDs at PCHF included 19 defects.
  •  A total of 1959 patients were operated on.
  •  A stacked area graph, pareto chart and bar graph were used to represent the results of the data.

by Dr. Samaa Akhtar

#CHD #CHDawareness #CHDawarenessbyPCHF #CHHRI #heartwarriors #1LacDonor4Misbah #MisbahUlHaq

PCHF CHD DATA REVIEW: ISSUE 1.
IN- PATIENT CARE: THE TOTAL NUMBER OF SURGERIES & INTERVENTIONS PER ANNUM IN THE LAST 5 YEARS

  • PCHF gathers and analyses CHD data of its patients to effectively report on health outcomes.
  • Awareness and advocacy at PCHF include transparency and evidence-based reporting. Educating the population is an essential component of our CHD cause.
  • The objectives are to improve the patient experience of care, improve the health of CHD populations in Pakistan, and to reduce the per capita cost of healthcare.

by Dr. Samaa Akhtar

#CHD #CHDawareness #CHDawarenessbyPCHF #CHHRI #heartwarriors #1LacDonor4Misbah #MisbahUlHaq

 

Our Mission

To serve as the flagship research institute for pediatric cardiology and congenital heart defects in Pakistan. PCHFRD brings thoughtfulness and empathy to children with CHD through evidence-based improvement in health and quality of life. We strive to discover and incorporate novel interventions, to facilitate partnerships between CHD researchers globally, and to address the burden of CHDs in Pakistan more efficiently through scientific understanding. Our mission is centered on improving and implementing quality standards for CHD research and treatment in Pakistan. We aim to perpetuate the understanding of epidemiological, public health and clinical aspects of CHDs between the CHD healthcare community and the public. PCHFRD also focuses on acquisition and management of grants for research.

Our goals are sustainability to the provision of standard and innovative CHD treatment in Pakistan. To foster the attraction and retention of resources in Pakistan’s scarce healthcare setting. Ultimately, strengthening the CHD community and health system in Pakistan.

Focus Areas

  • Epidemiology of CHD in Pakistan.
  • Data verification and analysis of existing CHD database in Pakistan.
  • International Quality Improvement Collaborative (IQIC) for Congenital Heart Disease based surgical and catheterization data collection for PCHF. Application of outcomes for quality improvement in PCHF funded treatments.
  • PCHF patient reported outcome measures using International Consortium for Health Outcomes Measurement (ICHOM) for CHD standard sets.
  • Research on the correlation between LMICs and CHDs.
  • Research on the correlation between maternal health and CHD.
  • Correlation between cousin marriages and CHD.
  • Rural and urban populations and CHDs.
  • Grant acquisition for research, clinical trials and CHHRI infrastructure.

Quantitative and qualitative data collection of CHDs in Pakistan

Objectives

Research centered on pediatric congenital heart defects. Extending into pediatric cardiology
To reduce the gap between innovative CHD interventions and implementation.
Evidence based improvement in CHD health outcomes and patient well-being
International research collaborations on CHD.
To bring sustainability to the fight against reducing the burden of CHD in Pakistan.

Research Values

Excellence

Innovation

Ethics & Social Responsibility

Sustainability & Transparency

Framework

Research at PCHF is divided into translational, applied, and clinical research for pediatric cardiology. With a concentration in congenital heart defects. It is a means to understand and devise improved and/or innovative methods for prevention and screening, treatment, better health outcomes, better management of the symptoms of CHDs and higher quality of life for patients.